Live Like Nobody Is Watching

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Respectforpatientautonomyanddataprivacyaregenerallyacceptedasfoundationalwesternbioethicalvalues.Nonetheless,asoursocietyembracesexpandingformsofpersonalandhealthmonitoring,particularlyinthecontextofanagingpopulationandtheincreasingprevalenceofchronicdiseases,questionsaboundabouthowartificialintelligence(AI)maychangethewaywedefineorunderstandwhatitmeanstoliveafreeandhealthylife.Whoshouldhaveaccesstoourhealthandrecreationaldataandforwhatpurpose?Howcanwefindabalancebetweenusers’physicalsafetyandtheirautonomy?Shouldweallowindividualstoforgocontinuoushealthmonitoring,evenifsuchmonitoringmayminimizeinjuryrisksandconferhealthandsocietalbenefits?Wouldbeingcontinuouslywatchedbyconnecteddevicesironicallyrenderpatientsmoreisolatedandtheirdatamoreexposedthanever?DrawingondifferentusecasesofAIhealthmonitoring,thisbookexploresthesocio-relationalcontextsthatframethepromotionofAIhealthmonitoring,aswellasthepotentialconsequencesofsuchmonitoringforpeople’sautonomy.Itarguesthattheevaluation,design,andimplementationofAIhealthmonitoringshouldbeguidedbyarelationalconceptionofautonomy,whichaddressesbothpeople’scapacitytoexercisetheiragencyandbroaderissuesofpowerasymmetryandsocialjustice.Itexploreshowinterpersonalandsocio-systemicconditionsshapetheculturalmeaningsofpersonalresponsibility,healthylivingandaging,trust,andcaregiving.Thesenormsinturnstructuretheethicalspacewithinwhichexpectationsregardingpredictiveanalytics,risktolerance,privacy,self-care,andtrustrelationshipsareexpressed.Throughananalysisofhomehealthmonitoringforolderanddisabledadults,direct-to-consumerhealthmonitoringdevices,andmedicationadherencemonitoring,thisbookproposesethicalstrategiesatboththeprofessionalandsystemiclevelsthatcanhelppreserveandpromotepeople’srelationalautonomyinthedigitalera.